Sh4.7 billion health data technology in limbo

Adam >> “Personally I think we need to be careful with Counties launching
IT systems; otherwise you’ll have 47 data centers”..

How about backup/replication or when systems/networks are down? Should each
county not have localized data which is replicated, backed up in two other
locations? One at some Central govt facility, the other at a “nearby”
culturally suitable county?

On Thu, Jul 5, 2018 at 10:25 AM Adam Lane via kictanet <
kictanet@lists.kictanet.or.ke> wrote:

> Jimmy
>
> I understand the KNH data center is primarily for the purpose of storing
> radiology images and allowing remote viewing from the experts there; I am
> not sure it is necessarily supposed to hold all patient medical data for
> the whole country, though some form of medical data for the 98 hospitals is
> supposed to be part of the project.
>
>
>
> Ali
>
> Personally I think we need to be careful with Counties launching IT
> systems; otherwise you’ll have 47 data centers…. Certainly they need to
> have capacity, ownership, governance roles etc. There’s already too much
> duplication of different systems even within counties, let alone across
> counties, and national standards and systems are necessary.
>
>
>
> Adam
>
>
>
> *From:* kictanet [mailto:kictanet-bounces+adam.lane=
> huawei.com@lists.kictanet.or.ke] *On Behalf Of *Ali Hussein via kictanet
> *Sent:* Thursday, July 05, 2018 9:03 AM
> *To:* Adam Lane <adam.lane@huawei.com>
> *Cc:* Ali Hussein <ali@hussein.me.ke>; KICTAnet ICT Policy Discussions <
> kictanet@lists.kictanet.or.ke>
> *Subject:* Re: [kictanet] Sh4.7 billion health data technology in limbo
>
>
>
> ​Completely agree Jimmy.
>
>
>
> Counties should anchor this initiative. I hope our Senators on the list
> are listening. 🙂
>
>
>
> Regards​
>
>
> *Ali Hussein*
>
> *Principal*
>
> *AHK & Associates*
>
>
>
> Tel: +254 713 601113
>
> Twitter: @AliHKassim
>
> Skype: abu-jomo
>
> LinkedIn: ke.linkedin.com/in/alihkassim
>
>
>
> 13th Floor , Delta Towers, Oracle Wing,
>
> Chiromo Road, Westlands,
>
> Nairobi, Kenya.
>
>
> Any information of a personal nature expressed in this email are purely
> mine and do not necessarily reflect the official positions of the
> organizations that I work with.
>
>
>
> On Thu, Jul 5, 2018 at 8:58 AM, JImmy Gitonga <jimmygitts@gmail.com>
> wrote:
>
> Ali,
>
>
>
> I left the iHub soon after and really never followed up on that. The IPRS
> launched much later. In my opinion, with devolution of health becoming a
> reality, this system is now possible and it should be done in a “friendly”
> county first to iron out the system. Only then should it go national.
>
> Making KNH the centre of the data store does not make sense. Health
> records are part of a person’s personal information and it should be stored
> together. It would be easier for the owner to control it. Where should
> citizen information be kept?
>
>
>
> Regards,
>
> *Jimmy Gitonga*
>
>
>
> *Mobile:* +254 722 740 883
>
> *Skype:* jimmygitts | *Twitter:* @Afrowave
>
> ________________________________
>
>
>
> P. O. Box 47910 00100
>
> Nairobi Kenya
>
> *Web*: afroshok.com
>
>
>
> On Thu, Jul 5, 2018 at 7:37 AM Ali Hussein <ali@hussein.me.ke> wrote:
>
> Jimmy
>
>
>
> Amazing initiative. Any idea what came of it?
>
>
>
> Regards
>
>
> *Ali Hussein*
>
> *Principal*
>
> *AHK & Associates*
>
>
>
> Tel: +254 713 601113
>
> Twitter: @AliHKassim
>
> Skype: abu-jomo
>
> LinkedIn: ke.linkedin.com/in/alihkassim
>
>
>
> 13th Floor , Delta Towers, Oracle Wing,
>
> Chiromo Road, Westlands,
>
> Nairobi, Kenya.
>
>
> Any information of a personal nature expressed in this email are purely
> mine and do not necessarily reflect the official positions of the
> organizations that I work with.
>
>
>
> On Wed, Jul 4, 2018 at 8:01 PM, JImmy Gitonga via kictanet <
> kictanet@lists.kictanet.or.ke> wrote:
>
> When I was at the iHub in 2014, I used to host a lunch to discuss the
> possibility of patient/health service client information being portable.
>
>
>
> We started the process by looking at why a user/client would need the
> information to be portable. With the disappearance of the family doctor and
> the proliferation of “supermarket medicine” with satellite clinics
> belonging to hospitals and health insurers “around the corner”, the ability
> to move with your health information became relevant. There was also the
> issue of tracking HIV+ clients who would register multiple times at
> different clinics to receive ARV medication, where the second or more
> monthly dose was sold to willing buyers.
>
>
>
> Answering the question, “who owns, controls, accesses, gives permission
> and uses what data and in what circumstances and for what purpose”, The
> simple answer is the user. A lot of work had been done in this area. A
> company known as I-TECH has already built on Open Source Software
> solution known as the OpenEMRConnect
> <sites.google.com/site/oeckenya/> that was the seed to build
> a Health Information Exchange System (HIES).
>
>
>
> As the iHub, we were to take this idea forward to concentrate on the User
> side of the platform. We proposed a system we called NINAFUU. NINAFUU would
> be a system that was to hold patient health data at the county level. The
> data would be collected from facilities across each county and submitted to
> the NINAFUU county node. This would be in line with the current DHIS
> system the Ministry of Health uses. We needed however was a system that
> would allow citizen/patient information to be exchanged on request from a
> particular facility or registered and practicing doctor.
>
> The only sticking point then is we had to wait for the rolling out of the Integrate
> Population Registration Service (IPRS) in order to be able to generate
> Unique identifiers available at registration of birth in Kenya.
>
> As far as I recall, we were exited by the possibilities of anonymised data
> for research and policy development especially if correlated with other
> data such rain patterns.
>
>
> Regards,
>
> *Jimmy Gitonga*
>
>
>
> *Mobile:* +254 722 740 883
>
> *Skype:* jimmygitts | *Twitter:* @Afrowave
>
> ________________________________
>
>
>
> P. O. Box 47910 00100
>
> Nairobi Kenya
>
> *Web*: afroshok.com
>
>
>
> On Wed, Jul 4, 2018 at 11:43 AM <kictanet-request@lists.kictanet.or.ke>
> wrote:
>
>
> ———————————————————————-
>
> Message: 1
> Date: Wed, 4 Jul 2018 08:41:31 +0000
> From: Adam Lane <adam.lane@huawei.com>
> To: Ali Hussein <ali@hussein.me.ke>
> Cc: “kictanet@lists.kictanet.or.ke” <kictanet@lists.kictanet.or.ke>
> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>
> Ali
>
> Aside from the data center hardware issue, you are right that the
> regulations are indeed very important. There needs to be clarity on who
> owns, controls, accesses, gives permission and uses what data and in what
> circumstances and for what purpose.. from the patients to local doctors to
> remote doctors to IT support staff to medical equipment management staff
> and beyond. I fully agree.
>
> Adam
>
> From: Ali Hussein [mailto:ali@hussein.me.ke]
> Sent: Wednesday, July 04, 2018 11:23 AM
> To: Adam Lane <adam.lane@huawei.com>
> Cc: kictanet@lists.kictanet.or.ke
> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>
> Adam
>
> Don’t lose my point. It is super important. Under what law or regulation
> are we going to move around sensitive health data? This country needs to do
> a refresh and reboot and stop Procurement Driven tenders.
>
>
> Ali Hussein
>
> Principal
>
> AHK & Associates
>
> On Wed, Jul 4, 2018 at 10:42 AM, Adam Lane <adam.lane@huawei.com > adam.lane@huawei.com>> wrote:
> Hi Ali
>
> I’m not sure I can comment on the data centre specifically, but I believe
> the project is much more than that. It is about the medical records
> software, servers and connectivity at the 98 hospitals so they can send
> radiology images to be viewed remotely (at KNH). The data centre at KNH
> would be to store images there and provide remote diagnosis.
>
> Adam
>
>
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