Sh4.7 billion health data technology in limbo

Jimmy

Amazing initiative. Any idea what came of it?

Regards

*Ali Hussein*

*Principal*

*AHK & Associates*

Tel: +254 713 601113

Twitter: @AliHKassim

Skype: abu-jomo

LinkedIn: ke.linkedin.com/in/alihkassim
<ke.linkedin.com/in/alihkassim>

13th Floor , Delta Towers, Oracle Wing,

Chiromo Road, Westlands,

Nairobi, Kenya.

Any information of a personal nature expressed in this email are purely
mine and do not necessarily reflect the official positions of the
organizations that I work with.

On Wed, Jul 4, 2018 at 8:01 PM, JImmy Gitonga via kictanet <
kictanet@lists.kictanet.or.ke> wrote:

> When I was at the iHub in 2014, I used to host a lunch to discuss the
> possibility of patient/health service client information being portable.
>
> We started the process by looking at why a user/client would need the
> information to be portable. With the disappearance of the family doctor and
> the proliferation of “supermarket medicine” with satellite clinics
> belonging to hospitals and health insurers “around the corner”, the ability
> to move with your health information became relevant. There was also the
> issue of tracking HIV+ clients who would register multiple times at
> different clinics to receive ARV medication, where the second or more
> monthly dose was sold to willing buyers.
>
> Answering the question, “who owns, controls, accesses, gives permission
> and uses what data and in what circumstances and for what purpose”, The
> simple answer is the user. A lot of work had been done in this area. A
> company known as I-TECH has already built on Open Source Software
> solution known as the OpenEMRConnect
> <sites.google.com/site/oeckenya/> that was the seed to build
> a Health Information Exchange System (HIES).
>
> As the iHub, we were to take this idea forward to concentrate on the User
> side of the platform. We proposed a system we called NINAFUU. NINAFUU would
> be a system that was to hold patient health data at the county level. The
> data would be collected from facilities across each county and submitted to
> the NINAFUU county node. This would be in line with the current DHIS
> system the Ministry of Health uses. We needed however was a system that
> would allow citizen/patient information to be exchanged on request from a
> particular facility or registered and practicing doctor.
>
> The only sticking point then is we had to wait for the rolling out of the Integrate
> Population Registration Service (IPRS) in order to be able to generate
> Unique identifiers available at registration of birth in Kenya.
>
> As far as I recall, we were exited by the possibilities of anonymised data
> for research and policy development especially if correlated with other
> data such rain patterns.
>
> Regards,
>
> *Jimmy Gitonga*
>
>
> *Mobile:* +254 722 740 883
>
> *Skype:* jimmygitts | *Twitter:* @Afrowave
>
> ________________________________
>
>
> P. O. Box 47910 00100
>
> Nairobi Kenya
>
> *Web*: afroshok.com
>
>
> On Wed, Jul 4, 2018 at 11:43 AM <kictanet-request@lists.kictanet.or.ke>
> wrote:
>
>>
>> ———————————————————————-
>>
>> Message: 1
>> Date: Wed, 4 Jul 2018 08:41:31 +0000
>> From: Adam Lane <adam.lane@huawei.com>
>> To: Ali Hussein <ali@hussein.me.ke>
>> Cc: “kictanet@lists.kictanet.or.ke” <kictanet@lists.kictanet.or.ke>
>> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>>
>> Ali
>>
>> Aside from the data center hardware issue, you are right that the
>> regulations are indeed very important. There needs to be clarity on who
>> owns, controls, accesses, gives permission and uses what data and in what
>> circumstances and for what purpose.. from the patients to local doctors to
>> remote doctors to IT support staff to medical equipment management staff
>> and beyond. I fully agree.
>>
>> Adam
>>
>> From: Ali Hussein [mailto:ali@hussein.me.ke]
>> Sent: Wednesday, July 04, 2018 11:23 AM
>> To: Adam Lane <adam.lane@huawei.com>
>> Cc: kictanet@lists.kictanet.or.ke
>> Subject: Re: [kictanet] Sh4.7 billion health data technology in limbo
>>
>> Adam
>>
>> Don’t lose my point. It is super important. Under what law or regulation
>> are we going to move around sensitive health data? This country needs to do
>> a refresh and reboot and stop Procurement Driven tenders.
>>
>>
>> Ali Hussein
>>
>> Principal
>>
>> AHK & Associates
>>
>> On Wed, Jul 4, 2018 at 10:42 AM, Adam Lane <adam.lane@huawei.com<mailto:a
>> dam.lane@huawei.com>> wrote:
>> Hi Ali
>>
>> I’m not sure I can comment on the data centre specifically, but I believe
>> the project is much more than that. It is about the medical records
>> software, servers and connectivity at the 98 hospitals so they can send
>> radiology images to be viewed remotely (at KNH). The data centre at KNH
>> would be to store images there and provide remote diagnosis.
>>
>> Adam
>>
>
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